Comprehensive, authoritative information from the most respected experts: For 30 years, that's what Children with Disabilities has given the thousands of students, faculty, and professionals who rely on it. Now this trusted text is in a NEW seventh edition, thoroughly updated with the very latest research, new instructor materials, and the critical issues professionals need to know as they prepare to work with children and families. Incorporating 5 years of significant research and progress in multiple disciplines, this highly anticipated new edition is the textbook of choice for courses on disability. The internationally respected editors bring together a who's who of contributors?of seasoned experts and fresh voices?definitive compendium of information about developmental, clinical, family, education, and intervention issues.
WHAT'S NEW
All-new chapters on diagnosis, neuropsychological assessment, "new" disabilities faced by survivors of previously fatal disorders, and complementary and alternative medicine
New multimedia instructor materials online, including high-quality downloadable medical illustrations
30+ new contributors from diverse fields
Expanded chapters on autism and ADHD
New developments in neuroscience, genetics, and imaging
Greater focus on interdisciplinary collaboration
Considerations from drafts of the DSM-5
Thoroughly updated content in every chapter
PowerPoint slides for each chapter, easy to customize for courses
Children with Disabilities retains and strengthens the student-friendly features of previous editions: concise and accessible chapters, a helpful glossary, chapter overviews, case studies that bring key concepts to life, extensive cross-referencing to make information easy to find, and resource lists for every topic. And with the complete package of new multimedia instructor materials, instructors will use this textbook effectively in their courses and prepare students for years of successful practice. An unparalleled text from the leading voices in the disability field, Children with Disabilities is the cornerstone resource future professionals will keep year after year to support their important work with children and families.
About the Online Companion Materials
About the Editors
Contributors
A Personal Note to the Reader
Preface
Acknowledgments
Letters from Andrew Batshaw
I. As Life Begins
Genetics and Developmental Disabilities
Mark L. Batshaw, Andrea Gropman, and Brendan Lanpher
Genetic Disorders
Chromosomes
Cell Division and Its Disorders
Genes and Their Disorders
Epigenetics
Genetic Testing
Environmental Influences on Heredity
Fetal Development
Adré J. du Plessis
Structural Development of the Brain
Functional Development of the Fetal Nervous System
Environmental Toxicants and Neurocognitive Development
Jerome Paulson
Scope of the Issue
Susceptible Periods of Development
Specific Toxicants
Public Policy Implications
Birth Defects and Prenatal Diagnosis
Rhonda L. Schonberg
Screening Evaluations During Pregnancy
Prevention and Alternative Reproductive Choices
Psychosocial Implications
Newborn Screening: Opportunities for Prevention of Developmental Disabilities
Joan E. Pellegrino
What Is a Screening Test?
Why Screen Newborns?
How Is Newborn Screening Done?
What Should Be Done When a Child Has a Positive Newborn Screen?
What Happens to Children with Confirmed Disease?
What Is the Risk of Developmental Disability in Children with Confirmed Disease?
How Can Screening Fail?
The Past, Present, and Future of Newborn Screening
Prenatal Screening
The First Weeks of Life
Chrysanthe Gaitatzes, Taeun Chang, and Stephen Baumgart
The Fetus Before Birth
The Birth Process
The Nervous System
Premature and Small-for-Dates Infants
Khodayar Rais-Bahrami and Billie Lou Short
Definitions of Prematurity and Low Birth Weight
Incidence of Preterm Births
Causes of Premature Birth
Complications of Prematurity
Medical and Developmental Care of Low Birth Weight Infants
Survival of Low Birth Weight Infants
Care After Discharge From the Hospital
Early Intervention Programs
Neurodevelopmental Outcome
II. The Developing Child Nutrition and Children with Disabilities
Rebecca M. Haesler and Jocelyn J. Mills
Typical Growth During Childhood
Nutritional Guidelines
Nutritional Issues in Children with Developmental Disabilities
Medical Nutritional Therapy
Special Nutritional Concerns in Children with Disabilities
Nutrition within Complimentary and Alternative Medical Care
Feeding and Its Disorders
Peggy S. Eicher
The Feeding Process
Feeding and the Influence of Medical Conditions
Feeding and the Influence of Tone, Posture, and Development
Feeding Problems in Children with Disabilities
Evaluation of a Feeding Problem
Managing Feeding Problems
Hearing and Deafness
Pamela Buethe, Betty R. Vohr, and Gilbert R. Herer
The 1-3-6 Guidelines for Screening and Diagnosis
The Hearing System
Defining Sound
Defining Hearing Loss
Causes of Hearing Loss
Identifications of Hearing Loss
Intervention for Hearing Loss
Vision and Visual Impairment
Brooke E. Geddie, Michael J. Bina, and Marijean M. Miller
Structure and Function of the Eye
Ocular Development
Development of Visual Skills
Common Disorders of the Eye in Children with Disabilities
Disorders of the Visual Cortex
Strabismus and Ocular Motility Disorders
Refractive Errors in Children
Vision Assessment
Blindness
The Brain and Nervous System
Amanda Yaun, Robert Keating, and Andrea Gropman
The Brain and Spinal Cord
The Peripheral Nervous System
The Microscopic Architecture of the Brain
Techniques for Evaluating the Central Nervous System
Muscles, Bones, and Nerves
Peter B. Kang
Components of the Neuromuscular and Musculoskeletal Systems
Symptoms and Signs of Neuromuscular and Musculoskeletal Disorders
Laboratory Testing and Radiography
Disorders of the Neuromuscular System
Disorders of the Musculoskeletal System
Principles for the Management of Neuromuscular and Musculoskeletal Disorders
Patterns in Development and Disability
Louis Pellegrino
Defining Disability
Defining Development
Patterns in Development
Disturbances in Development
Diagnosing Developmental Disabilities
Scott M. Myers
Atypical Patterns of Development
Developmental Principles
Diagnostic Classification
The Diagnostic Process
Understanding and Using Neurocognitive Assessments
Lauren Kenworthy and Laura Gutermuth Anthony
The Purpose of Neuropsychological Assessment
A Model for Developmental Neuropsychological Assessment
Domains of Functioning Assessed in Neuropsychological Evaluations
Ensuring that Assessment Informs Management
III. Developmental Disabilities Developmental Delay and Intellectual Disability
Bruce K. Shapiro and Mark L. Batshaw
Early Identification of Developmental Delay
Defining Intellectual Disability
Classification of Intellectual Disability
Prevalence of Intellectual Disability
Associated ImpairmentsMedical Diagnostic Testing
Psychological Testing
Treatment Approaches
Down Syndrome (Trisomy 21)
Nancy J. Roizen
Prevalence
Chromosomal Findings
Effects of Trisomy 21
Early Identification
Medical Complications in Down Syndrome
Neurodevelopment and Behavior
Evaluation and Treatment
Intervention
Inborn Errors of Metabolism
Mark L. Batshaw and Brendan Lanpher
Types of Inborn Errors of Metabolism
Mechanism of Brain Damage
Associated Disabilities
Diagnostic Testing
Newborn Screening
Therapeutic Approaches
Speech and Language Disorders
Sheela Stuart
Components of Communication
Typical Development of Speech and Language
Bilingualism
Communication Disorders
Assessment
Types of Communication Disorders
Treatment Approaches
Autism Spectrum Disorders
Susan L. Hyman and Susan E. Levy
Diagnostic Categories within the Autism Spectrum
Diagnostic Features of Autism Spectrum Disorders
Causes of Autism Spectrum Disorders
Epidemiology of Autism Spectrum Disorders
Early Identification of Autism Spectrum Disorders
Associated Conditions
Treatment Approaches
Attention Deficits and Hyperactivity
Marianne Glanzman and Neelam Sell
Diagnosis and Attention-Deficit/Hyperactivity Disorder Subtypes
Prevalence and Epidemiology
Clinical Presentation
Common Coexisting Conditions
Associated Impairments
Causes of Attention-Deficit/Hyperactivity Disorder
The Evaluation Process
Treatment of Attention-Deficit/Hyperactivity Disorder
Treatment with Coexisting Conditions
Alternative Therapies
Specific Learning Disabilities
M.E.B. Lewis, Bruce K. Shapiro, and Robin P. Church
Defining Learning Disorders
Response to Intervention
Prevalence
Specific Reading Disability
Specific Mathematics Disability
Impairments Associated with Specific Learning Disabilities
Health Problems Simulating Specific Learning Disabilities
Assessment Procedures
Intervention Strategies
Cerebral Palsy
Alexander H. Hoon, Jr., and Frances Tolley
What Is Cerebral Palsy?
What Causes Cerebral Palsy?
Epidemiology
Risk Factors
Diagnosis
Subtypes of Cerebral Palsy
Establishing the Etiology (Cause) of Cerebral Palsy
Associated Impairments in Cerebral Palsy
Comprehensive Management for Individuals with Cerebral Palsy
Neural Tube Defects
Gregory S. Liptak
Prevalence of Neural Tube Defects
The Origin of Neural Tube Defects
Prevention of Neural Tube Defects Using Folic Acid Supplementation
Prenatal Diagnosis
Treatment of Meningomyelocele in the Newborn Period
Primary Neurological Impairments in Children with Meningomyelocele
Associated Impairments and Medical Complications
Educational Programs
Psychosocial Issues for the Child
Interdisciplinary Management
Traumatic Brain Injury
Melissa K. Trovato and Scott C. Schultz
Incidence of Traumatic Brain Injury
Causes of Traumatic Brain Injury
Types of Brain Injuries
Concussions
Detection of Traumatic Brain Injury
Severity of Traumatic Brain Injury
Acute Treatment of Traumatic Brain Injury
Rehabilitation of Children with Traumatic Brain Injury
Outcome of Moderate to Severe Traumatic Brain Injury
Epilepsy
Tesfaye Getaneh Zelleke, Dewi Francis T. Depositaro-Cabacar, and William Davis Gaillard
Epilepsy: Definitions and Classification
Diagnosis and Evaluation
Treatment
Multidisciplinary Care
The New Face of Developmental Disabilities
Nancy J. Roizen and Adrienne S. Tedeschi
Sickle-Cell Disease
Cancer: Acute Lymphocytic Leukemia and Brain Tumors
Human Immunodeficiency Virus
Chronic Kidney Disease
Behavioral and Psychiatric Disorders in Children with Disabilities
Adelaide Robb
Prevalence of Psychiatric Disorders Among Children with Developmental Disabilities of Specific Etiologies
Causes of Psychiatric Disorders in Developmental Disabilities
Psychiatric Disorders of Childhood and Adolescence
Vulnerability
Evaluation
Treatment
IV. Interventions, Families, and Outcomes Early Intervention
Toby Long
Principles of Early Intervention
Research Support for the Value of Early Intervention
Components of Part C of the Individuals with Disabilities Education Improvement Act: The Infants and Toddlers with Disabilities Program
Status of Early Intervention Services
Future Considerations
Special Education Services
Elissa Batshaw Clair
Eligibility for Special Education
Special Education: A Description
The Individualized Education Program
Services Provided by Special Education Teachers
The Role of the Special Education Teacher in the General Education Curriculum
General Education Legislation Affecting Special Education Teachers
The School-Parent Connection
Behavior Principles, Assessment, and Therapy
Michael F. Cataldo, SungWoo Kahng, Iser G. DeLeon, Brian K. Martens, Patrick C. Friman, and Marilyn Cataldo
Operant Learning Principles and Practices
Behavioral Assessment of Problem Behaviors
Functional Assessment and Treatment Development
Preference Assessment and Reinforcer
Evaluation: From Basic Principle to Application
Common Behavior Problems
Severe Problem Behaviors
Practical Strategies for the Classroom
Behavioral Teaching Strategies
Behavioral Instruction Programs
Occupational and Physical Therapy
Philippa Campbell
Therapy Types and Purposes
Intervention Frameworks Used by Physical and Occupational Therapists
Team Structures and Therapist Roles
Features of Pediatric Therapy Services and the Role of Therapists
Intervention Strategies
Evidence-Based Intervention
Physical Activity, Exercise, and Sports
Donna Bernhardt Bainbridge and James Gleason
Health Risks of Children with Disabilities Related to a Lack of Physical Activity
Considerations for Specific Disabilities
Community Programs
Policies Affecting Participation in Physical Activity
Choice and Preparation for Physical Activity, Exercise, or Sports
Injury Risk in Children
Oral Health Care
H. Barry Waldman, Steven P. Perlman, and George Acs
Eruption of Teeth
Problems Affecting Development of Teeth
Contributing Factors to Oral Conditions of Individuals with Disabilities
Oral Diseases
Malocclusion
Prevention of Dental Caries and Periodontal Disease
Providing Dental and Orthodontic Treatment
Special Issues Regarding Dental Care for Children with Specific Developmental Disabilities
The Challenge of Providing Dental Services to Individuals with Disabilities
Assistive Technology
Larry W. Desch
Definitions and Overview
Technology for Medical Assistance
Assistive Technology for Disabilities-Principles and Examples
Assessment for Assistive Technology
Effects of Assistive Technology on the Family and Community
Caring and Coping: Helping the Family of a Child with a Disability
Michaela L. Zajicek-Farber
Understanding Family Systems
How Families Cope with the Diagnosis
Long-Term Effects on the Parents
Effects on Siblings
Effects on the Extended Family
Effects on the Child with a Disability
Principles of Family-Centered Care: Role of the Professional
The Role of Society and Community
38 Complementary and Alternative Therapies
Michelle H. Zimmer
Evidence of Treatment Efficacy
Approaches to Advising Families About Complementary and Alternative Medicine
Ethical Considerations
Kruti Acharya, Michelle Huckaby Lewis, and Peter J. Smith
Basic Ethical Principles
The Relationship Between Law and Ethics
Ethical Dilemmas
Institutional Ethics Committees
Protection of Human Subjects in Research
Future Expectations: Transition from Adolescence to Adulthood
Nienke P. Dosa, Patience H. White, and Vincent Schuyler
General Principles of Transition
Moving Toward Independence: Self-Determination
Moving from School to Work
Moving from Home into the Community
Moving from Pediatric- to Adult-Oriented Health Care
Health Care Delivery Systems and Financing Issues
Angelo P. Giardino and Renee M. Turch
The Concept of a Medical Home
Importance of Coordination of Care
Changes in Financing Health Care for CYSHCN
Looking Toward the Future Appendix A Glossary
Arlene Gendron
Appendix B Syndromes and Inborn Errors of Metabolism
Kara L. Simpson
Appendix C Commonly Used Medications
Michelle L. Bestic
Appendix D Childhood Disabilities Resources, Services, and Organizations
Index